Edith and her daughter Natalí Dafne Flexer
Since 2007, Natalí Dafne Flexer Foundation carries out its charity dinner show, “Chefs en su Salsa”, with the aim of raising funds to continue with its mission: to improve the quality of life of children and adolescents with cancer, promoting access to appropriate treatments and providing families the best care, regardless of their socioeconomic status.
This year, due to the COVID-19 pandemic, the modality will be virtual and they will present “Chefs at home”, a dinner show that will feature the participation of Maru Botana, Miranda! and the humorist Miguel Martín. The total proceeds will be used to support the services that are provided free each month to more than 1500 children with cancer.
Those who wish to participate and collaborate can do so through the Foundation’s website. Maru Botana is going to give a virtual cooking class, indicating the step by step of a surprise dish, which the participants will make with the ingredients they will receive at home. Then, it will be the turn of the Miranda show! and the humorist, Miguel Martín. In addition, there will be an electronic raffle in which all numbers will have important prizes and donations can also be made from the website.
“Chefs at home”: the great solidarity night of the Natalí Dafne Flexer Foundation to help children with cancer
The Foundation is a non-profit organization that seeks to promote the access of children, adolescents and young people with cancer to adequate treatment in a timely manner, and to provide them and their families with the best support and care conditions throughout the treatment. and beyond.
It has nine offices strategically located throughout the country: in front of the Ricardo Gutiérrez Children’s Hospital, in front of the Garrahan Hospital, in Casa Cuna, in the Posadas Hospital, in the Hospital del Niño Jesús de Tucumán, in the Juan Pablo II Hospital in Corrientes, in the Avelino Castelán de Chaco Hospital, in the Maternal and Child Hospital Dr. Quintana de Jujuy, and in Tierra del Fuego.
It was created in 1995 by Edith Grynszpancholc in memory of her daughter, who died at the age of 9 due to this disease. In dialogue with ., its president told what is the task carried out for 26 years. “We accompany families, but we also help in the treatment and care of cancer children. We do many recreational activities, through our game rooms in each of the medical institutions where we are; We do the socio-emotional accompaniment of the family, that is, that access to treatment is as fast and with the least possible suffering; and we provide emotional support for the sick child, but also for the whole family. “
Edith Grynszpancholc with the celebrities who always accompanied her at each of her benefit dinners. This will be the first time it will be done virtually
“We publish books for families, which can be downloaded from our website and we also deliver them in print. We also support clinical and psychosocial research. We do infrastructure works in public hospitals and offer training scholarships for professionals. The Foundation’s work is very extensive and we try to cover all the aspects in which we can contribute so that the boy and his family are as good as possible, ”he said.
But work in times of the COVID-19 pandemic multiplied and Edith and her team had to try harder than ever. “Families need us even more than before and we cannot leave them alone at this time. So we got to work online, we celebrate the children’s birthdays virtually, we do psychological follow-up of the families via Zoom and we support them in accessing treatment, so that families can adapt to the new modalities that he imposed the pandemic, “said Edith.
The constant support that the Foundation provides to children with cancer
“Also, we help with access to medication, since there are shortages, sometimes as a consequence and others as an excuse for the pandemic and quarantine. I am talking about the lack of medication or not providing it on time. There we get involved, not only with the cases of children but also with those of adults. In the most intense part of the quarantine, we buy the medication at the pharmacy closest to the boy’s home. It was a great human and economic effort, but we did it convinced that it was worth it and that it is worth it ”, he stated.
The Natalí Dafne Flexer Foundation was created in 1995 by Edith in memory of her daughter. “I founded it because I had learned many things and I did not imagine how other families were going through the disease and the treatment. I was able to get my hands on a large amount of bibliographic material in English and my first action, shortly after Natalí’s death, was to start translating it so that all the families, and even the teachers, could have more information. At that time, there was no Google. Today we continue to publish books digitally and also in print. We have 23 books on different topics related to cancer “, he claimed.
“Afterwards, we continue doing recreation activities, as they are very important for a sick boy. Today, the games rooms are exclusively for children with cancer, so that they do not have contact with any contagious disease. We promoted specialized nursing training and then we supported the training of oncologists, we administered training scholarships, etc. We always approach families with great joy, but also with great responsibility. We do our best for them and we are always at the forefront in all matters related to cancer, “he said.
Natalí was 7 years old when she fell ill. One day he returned from school with pain in his leg and they made him a bandage through a prepaid. “After 11 days, he felt pain again and, luckily, a gym teacher sent me to say that it was difficult for him to run. The pain was in the other leg and it turned out to be a misdiagnosis. Precisely for this reason, from the foundation we strongly support diagnostic tests and second opinions, ”her mother recalled.
“He had a tumor, but on his other leg that had been bandaged. It had already come out in the X-ray they did the day I took her to the consultation, but they had not seen it. It happened to me with one of the best escorts out there at that time, so it is not difficult to imagine that this can happen in many other areas. This drove me a lot, ”he said. “My daughter was in treatment for a year and three months, but she passed away in 1995, at the age of 9. She was my third female daughter and then I got pregnant with my son, who is 23 years old today. After his death, I looked at the books in English that had helped me and I thought that I could help that way, because that information that was so valuable to me had to be available to others and free of charge ”.
Natalí Dafne Flexer in a family postcard with her parents and three siblings
“After his death, it was very difficult for me to reintegrate into my own family, because during a child’s illness one puts all the energy into him. As I experienced it, I know a lot about what happens to parents and siblings of children with cancer. From the beginning, I spoke with the mothers in the hospitals and, 15 days after my daughter’s death, I was already sending faxes to the United States to request authorization and to translate the books, ”he revealed.
The pandemic brought another series of difficulties, but Edith and her team were able to overcome them successfully. “The psychologists who work with us reduced their visits to hospitals, so as not to interrupt the accompaniment of families. In addition, we were organizing a Latin American Congress that was face-to-face and we changed it to virtual. But we don’t suspend it, ”he said. “There are people who realize that, even in crises, there are many people who are worse off. For this reason, we continue to receive support for our work, even at a time as difficult as this. We continue with the organization of this fundraising event because we know that many people know that there is someone who is worse off and that, together, we can help him ”.
“The people who work at the Foundation today are doing it more than ever, because we have the responsibility to continue helping all those who are having a very bad time due to the disease they are experiencing and, above all, in the middle of a pandemic”, he concluded Edith.
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